Finding balance.

Sometimes, I clean. Almost always, I cook. Rarely, I bake. Often, I am in the moment, enjoying and soaking it in. Sometimes, I fall apart. Many times, I take a deep breath and try again, or walk away. More often now, I’m reading scripture. Always, I love, even if I don’t like the behavior, I love the other human beings trying to do their best like me, even if it’s sometimes, almost always, rarely, or often.

Trying to find a balance between my professional goals and my personal life; fun and the desire for home-made meals, cleanliness, tidy rooms, and a well-behaved and happy toddler; wife and mother and daughter and neighbor and friend.

It’s a first for me since quite a while back. I’m finally able to look for a “normal” balance outside of the IVF realm.

In the midst of IVF, there is no balance. While life is going on outside of treatment (family, professionally, globally), that treatment is all-consuming. Medications. Appointments. Complimentary treatments requiring more appointments to aid the medications or relieve symptoms. More medication: needles and pills and suppositories and supplements and patches and more needles… and more pills.

And the hot/cold highs/lows and crashes.

And the tears. The guilt. The loss.

But the toddler, he is proof that all that stuff can work. He is ridiculously intelligent and challenging and I don’t even care if I only think that because I’m his mom – because I’m his MOM. Something I once thought was quite possibly impossible. I’m so thankful.

 

Be still.

Exodus 14:14 “The LORD will fight for you; you need only to be still.”


So, I’m doing my best… Bedrest day 1. My clinic required two days back when we transferred baby J, but now they say just one. Since the transfer in March with one day of bedrest did not work, I’m going back to two days (nobody told me to, I just decided it was best to go with what worked before).

Baby J is at daycare and hubby is at work.

By the way, look at the size of that embryo! The others we transferred were never coming out of their shell like this one. The dense part near the bottom center is the baby and the rest will turn into placenta. The transfer was smooth. No need to give time for the bladder to fill and no need to empty any off the top. In the past, I’ve needed just a little more time or was overfull. Guess that repetition has helped me.

Trying to find funny stuff to watch over the next two weeks. If you have any recommendations, please let me know! I’ll watch “Sisters” for sure. Anything else?

Jimmy Fallon is my “go-to” right now. Here’s one for you all:

http://www.nbc.com/the-tonight-show/video/first-textual-experience-with-sting/3107263

Jimmy is hilarious, but Sting… well, he’s Sting… sooo good. And yes, all I’m doing in bed right now is eating.

FET eve.

Last night, March 13, I took my final Lupron shot in this protocol. It began on February 10, so that seemed like a long time! Some tips I’ve learned about the tummy shots: sit down and lean forward so you can get a good pinch of skin near your belly button; put the needle to your skin, inhale, then as you exhale, insert the needle; let go of the pinch, and push the plunger. I avoided almost all bruising by doing it this way.

Last week, I started my PIO (progesterone in oil) shots and continued my Delestrogen shots – both IM (intramuscular) in the upper, outer quadrant of my backside. I also added one trigger shot (hcg) to my backside and continue the hcg shots a couple more times this week but in my tummy like the Lupron. I don’t mind the ones in the tummy as bad because I can see and have more control of the needle, oh, and they aren’t nearly as deep. BUT, if you have to do the IM shots in your backside, sit down. This is the first time I’ve tried sitting and it works so much better. I think the muscle is maybe more relaxed. No, I do not like the PIO shots.

I was given orders to quit taking Cialis (yay!) and Pentoxy last week, but I will continue the estrogen pills morning and night, adding prednisone morning and night also. The past four days, I’ve taken Medrol – I don’t remember what this one is for at all – but I only take it four days.

Tomorrow is the big day. Another big day to add to all our big days.

I told baby J today that we would get to meet his brother or sister tomorrow and that we would bring home pictures (of our embryo) to show  him. Then, I told him, in about 8 months, we get to meet his brother or sister in person.    !!!

I don’t know if he understood any of it. It doesn’t seem like a normal conversation to have, but maybe, people in our situation have these kinds of conversations with their children. I don’t want to conceal the process as I have nothing to hide. I’m not ashamed. I don’t have guilt about IVF. I’m so honored to have the opportunity to conceive and give birth to my child.

I don’t say much about my faith, but I just can’t wrap my mind around how we got here this time. I understand the science of it. I understand the process. We’ve been through so many obstacles, low AMH diagnosis, MTHFR diagnosis, tried IUIs, IVF, and then one more obstacle: Asherman’s Syndrome. Last year, at this time, I had NO UTERINE CAVITY. It was adhered together, flat like a pancake, growing no endometrium. The surgeries opened and helped clear the scar tissue, but the endometrium was so badly damaged that it wasn’t responding well to hormones. On the ultrasounds, you can see scar tissue deep in the uterine tissue, which obviously causes a problem when it needs to grow a functional layer to slough each month.

But here we are with a 7.2 lining as of last Tuesday. The past two months’ lining didn’t even make it to 6.

Science can only do so much. We know this. We don’t have all the answers.

This is God stuff.

Tomorrow is God stuff.

Science can coordinate all the events, but life begins only with God.

If you could, say a prayer. Pray not for me, but for all of us, that we all find the God stuff. There is enough glory given to the gore and other stuff barraging us all the time.

Let’s give the glory to God.

Pentoxifylline and Cialis.

I just have to put it out there, because I haven’t found any other account of it.

If you are also experiencing these two, please please comment and share your experience.

These two are not my friends right now, but they are part of my plan to grow a healthy endometrial lining for our upcoming FET.

Last month, I also took Pentoxifylline and suffered from a nasty headache in the migraine territory, accompanied by nausea and dizziness. It lasted about two days, but when I learned to take it WITH food, it seemed to ease up and go away. I was also taking Viagra suppositories last time, so it could’ve been my body adjusting to both of those.

This time, the Viagra suppositories have been replaced by oral Cialis. I don’t know if that makes any difference, but here we are, and I’ve been struggling with all-over aches from my neck to my knees, but mostly moderate to severe aches in my lower back and hips. I finally found sleep last night by sleeping on my stomach. Today, I managed the morning just fine but gave in to some help from Tylenol this afternoon. So. Much. Better.

I have an early ultrasound and blood work in four days, so I’m hoping I can hold on until them or that the aches would subside by then.

Anybody?

I’m just so curious to see if anyone else in on this stuff. I can’t see that there are any studies going on and I always wonder about the long-term results from all these meds. I guess I’m off the standard prescription for IVF and FET patients and I’m now onto the somewhat undocumented stuff. Fun. ha.

I kinda have to psyche myself up for my next dose of fun. Makes surgery not seem like such a bad alternative.

Okay, okay. This will all be good. We will learn from it and I hope these crazy meds will make a beautiful lining together. Which will grow a beautiful baby. Who we can spoil with love and kisses. Can we really be that lucky?

The day after Day 10.

So, at the day 5 ultrasound and blood draw, my lining was at 6mm and estrogen was on the low side. The lining needs to be at 8mm before transfer. The decision was made to increase one medication in hopes that everything would shape up by day 10, which was yesterday.

Yesterday, baby J and I loaded into the car at 6:15am to get him off to daycare and me to the clinic for my 7:30am appointment before my 7:45am meeting at work. The ultrasound showed fluid in the uterus and an inconsistent lining (some places at 8 while others were 6). It also showed remaining damage (deep in the muscle) from the original surgeries that completely closed my uterus and caused the Asherman’s Syndrome. Doc doesn’t know why there is fluid accumulating, but told us that uterine scars (usually from c-sections) sometimes weep. All of this was explained today when our doc examined me again to see everything in real time.

FET is cancelled.

Doc has a new plan for medication and hopes to do a mock cycle next month as I don’t have the time to take off work for a FET. He will then get to see how my body reacts to the new plan for meds and how long it takes to get the lining where it needs to be for the best chance of a successful FET. Stay tuned because you won’t believe what meds I get to take next time around.

My doc is working hard to fix another doc’s mistake.

Disappointed. Frustrated. Tired of crying. Enjoying my glass of wine and looking forward to some coffee and chocolate tomorrow. Maybe a mixed drink, too.

Day 1.

All systems go.

Ultrasound today checked lining and ovaries. No cysts. Lining is thin. Blood draw to check estrogen came back acceptable, so medications begin. Continuing Lupron, baby aspirin, folate, P5P (B6), methylcobalamin (B12), prenatal, vitamin D, calcium, and fish oil. Adding pills and patches for estrogen.

Another ultrasound and blood draw on Friday.

Hesitantly excited.

Medicating and Waiting…

“Can you be patient?” This question keeps coming back to me. My doc asked me this when we first sat down to discuss the Asherman’s diagnosis and upcoming treatment plan of surgeries and hormones. “Yup,” I said as I knew I had no other choice. If we want to try to have another baby, I need to have a functioning uterus. No other option is present but to be patient. I’m not a big fan of patience. I like to just push through, whether that means staying up later or working harder or calling for extra help. That doesn’t really work in this case.

It really is such a short period of time in the big scheme of things. It’s so short in comparison to so many other stories and heartaches I hear about every day. My diagnosis wasn’t as bad as it could be, but I can’t have any more children, not even with IVF if I don’t treat this and soon.

I was hoping to have an appointment yesterday that would allow our doc to take a look and see how things were healing. Was there scar tissue remaining? Did the lining recover? Do I need another surgery? Did the scarring lessen or is there additional scarring? That appointment was cancelled because my doc wants to see me after I’ve had more time on the hormones, building and sloughing the lining, and see where that takes us. So, I’ve another week on estrogen, a week on progesterone, hopefully my period starts and I can get an appointment on the books. I’m really looking forward to learning our next step.

Baby J is now a year and a half. He is a climber of everything all of the time with no fear, unless it’s time to sleep. He’s running and falling, eating anything we let him (even some things we wish he wouldn’t), hugs and blows kisses, points at our nose/ears/mouth/teeth/eyes-ouch, and empties every cabinet he can open.

He is a dream-come-true.

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