Infertility – Asherman’s Syndrome

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Try, try again. :)

Good news today. Probably the best news we could get. Lining was almost 6 and triple layer and our doc said he would transfer with a lining like this. !!!! That means, my uterus which was completely obliterated 7 months ago, is now functioning, maybe not optimally, but functioning.

We are going to initiate a period with medicine, then repeat the meds used last cycle with a few tweaks to the plan. If things look good along the way, on day 20, my doc checks the lining again and we potentially transfer an embryo.

If anything weird presents itself along the way or the lining is not satisfactory on day 20, we go into surgery where he will remove more of the scar tissue from the initial damage. This will hopefully provide more “real estate” (as he says) and give us a better chance to grow a healthy lining and baby.

Doing a mind overhaul over here. I’ve got so much to love in my life. There’s no point fixating on the past and things I cannot change. I must focus on keeping this me (scars and all) as happy and healthy as I can, which mandates lots of fun, laughter, and a full belly – at least that’s what I think. :)

I am a science experiment.

If I didn’t feel like an experiment before, I certainly do now. We tackled the “unknown” causing us to not conceive when we enlisted the help of IVF and were gifted with baby J. Now, adding to that “unknown” my battered and scarred uterus, and we are all left scratching our heads.

This month was prepared to be a mock cycle, trying new meds to build up the uterine lining sufficiently. We are up against quite a challenge due to the severity of the scar tissue deep in the uterus. So, of course, my body would decide to rebel against all reason and, even while on estrogen, it would decide to begin sloughing off the functional layer of uterine lining that we are so desperately trying to build…. 7 days early.

It’s day 14, but my body is acting like we are on day 21 or further. I’ve had medicated cycles before where the sloughing didn’t begin until well past day 28. What is going on?

The orders are to stay on meds unless the bleeding continues, then we go back to birth control pills, but either way, we keep our final appointment next week. I can’t imagine what my doc is going to say. I hope he will have experience with sassy uterus’ like mine and have a plan all ready to go, with extra support during the last two weeks so we keep things from falling apart too soon like they did this time.

I do feel that things are progressing in the right direction. I feel more bloated in my lower abdomen – not pleasant, but when the goal is to build and promote blood flow, I think this is a positive. The acupuncture seems to have eliminated any cramping associated with all of this, so that’s great, and it’s also helped immensely with my anxiety and general feeling of being overwhelmed by the unexpected/disappointment/”sky is falling” moments. I don’t know what did the trick to get rid of the fluid (acupuncture, viagra, pentoxy, or cutting out dairy/sugar), but it was gone yesterday. Hopefully, we can keep it away. I kind of expected some strange effects from the viagra, but there is nothing to report. Ever since I started taking the pentoxy with food, the nausea/headache hasn’t returned.

So, I now see a chiropractor, acupuncturist, and fertility specialist on the regular – they are all amazing and wonderful, I might add. I have eliminated gluten from my diet and nearly eliminated dairy and sugar. I take supplements three times a day, a various concoction of prescription meds which change each month and go in both ends, and at least a couple times a week, I give myself an injection (sometimes subQ, sometimes IM).

This has become my normal.

Daily, I remind myself how lucky I am to have this life with my husband, toddler, cat, dog, house of my own, parents, brother, in-laws, and friends who are always willing to listen and help any way they can. My new normal is wild, but it won’t last long in the grand scheme, just as time with my loved ones will pass all too quickly.

Soaking in the moments that bring me joy and doing my best to smile through the rest.

Medicating and Waiting…

“Can you be patient?” This question keeps coming back to me. My doc asked me this when we first sat down to discuss the Asherman’s diagnosis and upcoming treatment plan of surgeries and hormones. “Yup,” I said as I knew I had no other choice. If we want to try to have another baby, I need to have a functioning uterus. No other option is present but to be patient. I’m not a big fan of patience. I like to just push through, whether that means staying up later or working harder or calling for extra help. That doesn’t really work in this case.

It really is such a short period of time in the big scheme of things. It’s so short in comparison to so many other stories and heartaches I hear about every day. My diagnosis wasn’t as bad as it could be, but I can’t have any more children, not even with IVF if I don’t treat this and soon.

I was hoping to have an appointment yesterday that would allow our doc to take a look and see how things were healing. Was there scar tissue remaining? Did the lining recover? Do I need another surgery? Did the scarring lessen or is there additional scarring? That appointment was cancelled because my doc wants to see me after I’ve had more time on the hormones, building and sloughing the lining, and see where that takes us. So, I’ve another week on estrogen, a week on progesterone, hopefully my period starts and I can get an appointment on the books. I’m really looking forward to learning our next step.

Baby J is now a year and a half. He is a climber of everything all of the time with no fear, unless it’s time to sleep. He’s running and falling, eating anything we let him (even some things we wish he wouldn’t), hugs and blows kisses, points at our nose/ears/mouth/teeth/eyes-ouch, and empties every cabinet he can open.

He is a dream-come-true.